A REMINDER OF WHERE YOUR MONEY GOES

We are pleased to confirm that we have raised a staggering £100,000 to help support the work of the Niemann Pick-Disease Group (UK). With the great fundraising events already in the preparation stages for 2012 we are hoping to add to this figure significantly by the end of 2012.

 

Your money continues to be used in four ways:

  1. To help the NPDG(UK) continue supporting families affected by this disease which includes the  funding of a clinical nurse specialist and Families Officer;
  2. to aid and promote research into Niemann-Pick type C;
  3. To enable the "Hope for Hollie" travel fund to continue. This fund offers financial support for families suffering from Niemann-Pick type C to  travel to the USA and access research studies taking place at the National Institute of Health in Maryland;
  4. In 2011 the proceeds of the Hope for Hollie skydive were split 50/50 between the NPDG(UK) and a dream holiday fund for Hollie;

Please remember it's not all about how much you can give – it is just as important for us to continue to raise awareness of Niemann-Pick Diease by letting as many people as possible know that this disease exists.

 

Thank you for your continued support.