In 2007 our beautiful 2 year old daughter, Hollie, was diagnosed with Niemann Pick Type C ('NP-C') an extremely rare metabolic condition which causes neurological decline and for which there is no cure. Less than 100 children suffer from this condition in the UK and only 1000 worldwide.

This website is the central point for our campaign to raise awareness of NP-C, a condition not only affecting our daughter Hollie, now aged 6 but also another boy from Milton Keynes, 5 year old Joshua Culip.

The "Hope for Hollie" campaign has been launched to help raise awareness of NP-C and to raise funds to support the work of the Niemann-Pick Disease Group (UK).   Hollie's mum, Helen, is a Trustee of the NPDG (UK) and knows first hand the importance of fundraising which enables the charity to continue supporting families affected by this disease and to contribute to vital research into a treatment or cure.

To find out more about the NPDG(UK) you can visit their website at http://www.niemannpick.org.uk/ or contact Toni Mathieson, the Charity's Executive Director on 0191 415 0693 and make reference to the "Hope for Hollie" campaign.

The Hope for Hollie Campaign is pleased to announce that the 2012 skydive event will take place on Sunday 15 July 2012 at Banbury.   We are currently recruiting jumpers for this years skydiving team.

If you are interested in taking part please telephone Click & Jump on 0845 6088844 and book your space quoting Hope for Hollie (limited numbers available).  Total cost of jump is £250; reservation fee is £50 to be paid on booking your space.

Once you have booked your space please email info@hopeforhollie.co.uk to let us know you have booked. 

All money raised will go to the Niemann Pick Disease Group (UK)

29th February 2012 is World Rare Disease Day.  Niemann Pick Type C is one of 7,000 different rare diseases affecting many around the world. Visit www.raredisease.org and see how you can play a part in Rare Disease Day!

Thanks to the generosity of Promise Dreams, an organisation which grants special wishes to seriously and terminally ill children and Thomson Holidays five Niemann Pick families including Hollie made a trip of a lifetime to Lapland at the beginning of December 2011. The trip was a huge success thanks to the kindness and support shown by all the Thomson reps from the minute we stepped of the plane. Our worries of lack of snow were completely unfounded! We had never seen so much snow and it didnt stop snowing for the duration of our stay. The highlight of the trip for the children and all the parents was the day at Santa Resort where everyone had the opportunity to take a husky ride, try out snowboarding and meet Santa himself as well as learn lots about the Lappish ways!  On the final day of our trip we were treated to a reindeer safari in minus 18 temperatures.  Click on the Gallery tab and 'NPC Kids Dream Trip to Lapland' on the left hand navigation to take a look at the pictures! 

This really would not have been possible without Promise Dreams funding. To find out more about this charity and the fantastic work they do granting wishes to children with life threatening conditions please visit www.Promisedreams.co.uk. We would also like to acknowledge the assistance of Thomson Holidays who have significantly subsidised the cost of this holiday and have worked hard to make sure this really was a dream trip for the children.