Welcome to the Hope for Hollie Website
In 2007 our beautiful 2 year old daughter, Hollie, was diagnosed with Niemann Pick Type C ('NP-C') an extremely rare metabolic condition which causes neurological decline and childhood dementia and for which there is currently no cure. Less than 50 children suffer from this condition in the UK and only 1000 worldwide.
This website is the central point for our campaign to raise awareness of NP-C, a condition not only affecting our daughter Hollie, now aged 8 but also two other children in Milton Keynes.
Our website is regularly updated with upcoming events and fundraising activities. The Hope for Hollie campaign is a local awareness and fundraising campaign which supports the work of Niemann-Pick UK, registered charity number 1144406
The "Hope for Hollie" campaign has been launched to help raise awareness of NP-C and to raise funds to support the work of the Niemann-Pick UK. Hollie's mum, Helen, is a Trustee of NP-UK and knows first hand the importance of fundraising which enables the charity to continue supporting families affected by this disease and to contribute to vital research into a treatment or cure.
To find out more about the NP-UK you can visit their website at http://www.niemannpick.org.uk/ or contact Toni Mathieson, the Charity's Executive Director on 0191 415 0693 and make reference to the "Hope for Hollie" campaign.
'Heard today the wonderful news that the HFH Campaign has smashed its fundraising record this year and raised in excess of £31k in support of NP UK. I want to say a huge thank you to the HFH Team for their continuing support and amazing achievements this year. Their tireless work, incredible commitment, generosity and compassion has taken this campaign straight to the hearts of the people of Milton Keynes and in return they have received a tremendous response - thanks to each and every person who has given their time, money and encouragement to make 2013 a resounding success for HFH
Executive Director, Niemann-Pick UK
CHARITY SINGLE RELEASE
On the 18 May in collaboration with RGS Music Group and Palladium Solutions the Hope for Hollie Campaign was delighted to launch its charity single The Climb sung by the superbly talented Holly Brewer and featuring a special appearance by Hollie and nine of her close friends. The single is available for download on Itunes now and the accompanying music video can be viewed on You Tube. Full details can be found on our dedicated charity single webpage www.hopeforholliesingle.com
Please help raise the profile of our social media campaign for the single by tweeting or linking on facebook!
'Dreaming of a Cure' Hoodies
We have recently taken delivery of some fantastic Hope for Hollie hoodies in various colours including pink, purple, electric blue and lime green. We are asking for a minimum donation of £18 per hoodie. If interested please email email@example.com
Hope For Hollie's 5th Annual Charity Ball Takes on a Charlie and the Chocolate Factory Theme!
Hollie's Chocolicious Ball took place on the 18 May at Jurys Inn, Milton Keynes. The event was attended by over 300 guests and was hosted by MKFM morning show presenter Gaz Wesley. Guests were welcomed by Mr Willy Wonka and were treated to a Charlie and the Chocolate factory performance by talented students of Shenley Brook High School. The evening included the launch of our charity single, The climb, a fantastic auction, raffle and live performance by Holly Brewer followed by a disco. Guests were also entertained by a casino, magician, balloon man lots of sweet treats.
Guests have once again provided extremely positive feedback and early indications show that we are on target to raise well over £10,000!
Hollie's Trailer Is On The Road!
Courtesy of Trailer Resources, the Hope for Hollie campaign is now taking to the road with their
Niemann Pick awareness campaign. On the 9th June ‘Hollie’s Trailer’ was launched and will travel between various locations around the country and possibly Europe. Be the first to spot the trailer and support our campaign via text by donating as little as HFHC75 £1, £5 or £10 to 70070 then follow the gift aid link to add your message “I have spotted the trailer” and the location.