Welcome to the Hope for Hollie Website
In 2007 our beautiful 2 year old daughter, Hollie, was diagnosed with Niemann Pick Type C ('NP-C') an extremely rare metabolic condition which causes neurological decline and for which there is no cure. Less than 100 children suffer from this condition in the UK and only 1000 worldwide.
This website is the central point for our campaign to raise awareness of NP-C, a condition not only affecting our daughter Hollie, now aged 6 but also another boy from Milton Keynes, 5 year old Joshua Culip.
The "Hope for Hollie" campaign has been launched to help raise awareness of NP-C and to raise funds to support the work of the Niemann-Pick Disease Group (UK). Hollie's mum, Helen, is a Trustee of the NPDG (UK) and knows first hand the importance of fundraising which enables the charity to continue supporting families affected by this disease and to contribute to vital research into a treatment or cure.
To find out more about the NPDG(UK) you can visit their website at http://www.niemannpick.org.uk/ or contact Toni Mathieson, the Charity's Executive Director on 0191 415 0693 and make reference to the "Hope for Hollie" campaign.
Hope For Hollie's 5th Annual Charity Ball Takes on a Charlie and the Chocolate Factory Theme!
The date, venue and theme have been set for our 5th annual charity ball in aid of the Niemann Pick Disease Group (UK). Hollie's Chocolicious Ball is the place to be for anyone who wants to be transported back into a Charlie and the Chocolate Factory setting filled with Candy and Chocolate. Why not join us for a night of great entertainment, food, drink and sweet delight. Make sure you reserve your tickets early as we have limited space in this venue and in previous years we have sold out quickly! Click on the 'Events' tab for more details.
Hollie's Trailer Is On The Road!
Courtesy of Trailer Resources, the Hope for Hollie campaign is now taking to the road with their
Niemann Pick awareness campaign. On the 9th June ‘Hollie’s Trailer’ was launched and will travel between various locations around the country and possibly Europe. Be the first to spot the trailer and support our campaign via text by donating as little as HFHC75 £1, £5 or £10 to 70070 then follow the gift aid link to add your message “I have spotted the trailer” and the location.